“Chasing My Cure”

Listen 49:03

Guest: David Fajgenbaum

When DAVID FAJGENBAUM was in medical school at the University of Pennsylvania he was suddenly hit by a mysterious illness that caused his organs to fail. His doctors were unable to identify what was wrong and while he managed to survive that bout, he was struck four more times with near-death episodes. Eventually. Fajgenbaum was diagnosed with a form of Castleman disease, a fatal disorder and so rare that there was little research on it. So he set out to understand his disease and find his cure. Fajgenbaum, an assistant professor of medicine at the University of Pennsylvania, comes in to talk about his memoir, Chasing My Cure, and how he used his medical training and crowdsourcing among patients and researchers to tackle Castleman’s disease, a novel approach that eventually led to an effective therapy.

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