Was advice for people with Chronic Fatigue Syndrome all wrong?

    Listen
    Science writer and editor Julie Rehmeyer. (Courtesy of Julie Rehmeyer)

    Science writer and editor Julie Rehmeyer. (Courtesy of Julie Rehmeyer)

    The way doctors treat different illnesses is guided – and often changed pretty dramatically – by research. But – what if the research studies that inform the course of treatment prove to be wrong?

    With Chronic Fatigue Syndrome, a highly influential research study, which was originally published in “The Lancet” in 2011, now appears to have been based on flawed science. This comes after the researchers were court-ordered to release their original data.

    In this edition of our series “Patient Files” we hear from Julie Rehmeyer, she’s a freelance science writer in Santa Fe, New Mexico, who just wrote about this flawed study for STAT News, but also has a very personal connection to this story. Rehmeyer has a memoir coming out next Spring, titled “Through the Shadowlands: A Science Writer’s Odyssey Into an Illness Science Doesn’t Understand.” 

    Cally Carswell produced this story.

    Want a digest of WHYY’s programs, events & stories? Sign up for our weekly newsletter.

    It will take 126,000 members this year for great news and programs to thrive. Help us get to 100% of the goal.