Royanna Williams, 45, is a Black woman in Asheville, North Carolina, who suffers with persistent pain from autoimmune illnesses, which disproportionately affect Black people.
Living with chronic illness had already left her anxious and depressed — feelings that have multiplied with the pandemic, Floyd’s death and the unrest that has followed.
“This right here is a whole ’nother ballgame,” she said.
Williams has started mental health televisits. They’ve helped.
Her medicines include hydroxychloroquine. Williams said she figured she’d have trouble getting refills the minute Donald Trump began promoting it without evidence that it works for COVID-19. “I was livid,’’ she said.
She hasn’t had to miss a dose yet, but Trump’s involvement has sparked mistrust. “Now I’m scared to take it,’’ she said. “I don’t know what’s in those pills.’’
She says white doctors have often discounted her pain and it has worsened as the pandemic has postponed her physical therapy sessions. Research has shown than Black people are often under-treated for pain, partly because of false beliefs about supposed biological differences. As recently as 2016, data showed that half of U.S. medical students and residents believed Black people didn’t feel pain the same way as other races.
Now there’s evidence that Black people with fever and cough are less likely than whites to be referred for COVID-19 testing, said Dr. Malika Fair, a health equity director at the Association of American Medical Colleges.
“Race is a social construct and not based on biology or genetics,” Fair said.
Dr. Heidi Knoll, who is white and one of Williams’ physicians, says a history of mistrust and mistreatment is part of what keeps many Black people from seeking medical care in ordinary times. COVID-19’s toll and government’s missed opportunities in handling the pandemic have compounded the problem, she said.
Her clinic, Mountain Area Health Education Center in Asheville, rushed to adopt telehealth for non-COVID treatment when the pandemic hit; now nearly half of all patient visits are by phone or video. Telehealth has expanded throughout the United States during the pandemic and Knoll, like many physicians, thinks it may help reduce racial health disparities by increasing access to doctors.
Williams knows her health makes her especially vulnerable to the virus. She has been terrified to go out since March, but staying home, where she lives with her autistic son and mother, has been stressful.
The recent protests over Floyd’s killing have given her hope that racial change may be coming — especially, because whites have been involved in the demonstrations.
“People are amped up because of this pandemic,” she said. “Maybe he had to be that white lamb” — sacrificed so whites would pay attention.