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Resources: Living With Dying in America


AARP
Offers extensive information on and support for caregiving, illness, grief, widowhood, funerals, wills and estate planning and advance directives.


601 E St., NW
Washington, DC 20049
1-800-424-3410


Aging With Dignity
Provides Five Wishes, an advance directives planning document.


1-888-5-WISHES


American Academy of Hospice and Palliative Medicine
Find board-certified hospice and palliative care physicians.


4700 W. Lake Avenue
Glenview, IL 60025-1485
(847)375-4712


Americans for Better Care of the Dying
Track changes in public policy, as well as reforms in pain management and support for family caregivers.


4125 Albemarle Street, NW, Suite 210
Washington, DC 20016
(202) 895-9485


The Center for Advanced Illness Coordinated Care, in collaboration with the Veteran's Administration Healthcare Network of Upstate New York at Albany
Find guidance on coping with the complexities of serious illness through the "Walking the Advanced Illness Road" section.


113 Holland Avenue (111t)
Albany, NY 12208
(518)626-6088


Center to Advance Palliative Care
Search the latest resources in palliative care available to hospitals and health care systems.


Mount Sinai Hospital
One Gustave L. Levy Place, Box 1070
New York, NY 10029-6547


Community-State Partnerships to Improve End-of-Life Care
Find out what individual states are doing to organize health care professionals, educators and policymakers.


(816)842-7110


Delaware End of Life Coalition
Network of people and resources to help the people of Delaware address the difficult issues surrounding end-of-life.


DyingWell
Defining Wellness through the End of Life - Resources for people facing life-limiting illness, their families, and their professional caregivers. Dr. Ira Byock, long time palliative care physician and advocate for improved end-of-life care, and a past president of the American Academy of Hospice and Palliative Medicine, provides written resources and referrals to organizations, web sites and books to empower persons with life threatening illness and their families to live fully.


Growth House
Excellent source for books and other publications regarding end-of-life care.


San Francisco, CA
(415) 255-9045


The Last Acts® Campaign
Research latest news on legislative, educational and policy initiatives from local, state and national organizations.


1951 Kidwell Drive, Suite 205
Vienna, VA 22182
(703) 827-8771


Last Chapters
Offers a collection of inspiring stories and video interviews of people who are facing death or chronic illness.


Missoula Demonstration Project
Research tool for communities interested in setting up models for improved care at the end of life.


320 Main Street
Missoula, MT 59802
(406)728-1613


National Hospice and Palliative Care Organization
Provides a search for hospice and palliative care, as well as statistics, resources and information.


1700 Diagonal Road, Suite 300
Alexandria, VA 22314
(703)837-1500


On Our Own Terms: Moyers on Dying
Bill Moyers' extraordinary public television series, On Our Own Terms: Moyers On Dying, started a national conversation about the issues, obstacles and models for changing the way Americans approach the end of life. WHYY-TV12 presents a rebroadcast of the 4-part series Sundays from 1:30-3pm - 9/23 (Living With Dying), 9/30 (A Different Kind of Care), 10/7 (A Death of One's Own), 10/14 (A Time to Change). For related resources:


Partnership for Caring: America's Voices for the Dying
Download forms for advance directives tailored to your state; join a consumer advocacy group focused on improving end-of-life care.


PFC Publications - Publications Office
325 East Oliver Street
Baltimore, MD 21202
Hotline: 1-800-989-9455 (option 2)


Project on Death in America
Lists innovations in the arts, social work, education and public policy.


Open Society Institute
400 West 59th Street
New York, NY 10019
(212)548-0150


Promoting Excellence in End-of-Life Care
Research innovative programs that have received grants and technical support to change the face of dying in America.


The University of Montana
1000 East Beckwith Avenue
Missoula, MT 59812
(406)243-6601



BOOKS ON THE END OF LIFE


Books can help people of all ages prepare for, grieve and understand death. The library call numbers listed are from the Free Library of Philadelphia. Books also available at other libraries in the tri-state region.


The Death of Ivan Ilych, (appears in various collections of Tolstoy stories) by Leo Tolstoy


Death: The Final Stage of Growth, by Elisabeth Kubler-Ross (155.937 D349t)


Dying Well: Peace and Possibilities at the End of Life, by Ira Byock (306.88 B996d)


The Good Death: The New American Search to Reshape the End of Life, by Merilyn Webb (306.9097 W383g)


Handbook for Mortals: Guidance for People Facing Serious Illness, by Joanne Lynn (Editor), Joan Harrold, Center to Improve Care of the Dying, Rosalynn Carter. Hardcover - 242 pages 1st edition (February 15, 1999) Oxford University Press (Trade); ISBN: 0195116623


How to Go on Living When Someone You Love Dies, by Therese A. Rando (155.937 R159h)


How We Die: Reflections on Life's Final Chapter, by Sherwin Nuland (616.078 N912h)


On Our Own Terms: Moyers on Dying
The four-part video series is available in the Health Video section in the Philbrick Popular Library at the Central Library, 1901 Vine Street, Philadelphia, PA. A set may also be reserved for individual or home use, by calling (215) 686-5367.


She Came to Live Out Loud: An Inspiring Family Journey Through Illness, by Myra MacPherson (155.937 J597m)


Talking About Death: A Dialogue between Parent and Child, by Earl A. Grollman (155.937 G895ta)


Tuesdays with Morrie: An Old Man, A Young Man, and Life's Greatest Lesson, by Mitch Albom (378.1209 AL14t)



TO FIND A GRIEF SUPPORT GROUP


  • Call your telephone operator and ask for the numbers for your local mental health association and your local suicide prevention center. Both types of agency have good grief referral lists. You need not be suicidal to get a grief referral from a suicide prevention center. Also check with your faith community.
  • Use the Yellow Pages and call hospitals and hospices near you. Ask to speak with the Bereavement Coordinator, Social Worker, or Chaplain's Office to get a local grief referral. Many hospitals and hospices provide grief support to clients for up to one year following a death and offer groups to the general public.