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Resources: Alzheimer's and Related Dementia


Recent WHYY programming on Alzheimer's

WHYY has featured television and radio programming, as well as podcasts.

 

Alzheimer's Association

The Alzheimer's Association offers programs and services for those with Alzheimer's disease and related disorders, their caregivers and loved ones.


Programs include Safe Return (wanderer's alert program), family caregiver training and conferences, newsletters, family assistance programs and support groups, as well as an extensive resource library, information abotu diagnosis, professional in-service training, public policy and advocacy.

24-hour toll free Helpline: 1-800-272-3900

 

Alzheimer's Disease Education and Referral Center National Institute on Aging

A service of the National Institute on Aging of the National Institutes of Health which provides information about Alzheimeris disease and related disorders.

Address: PO Box 8250, Silver Spring, MD 20907-8250

Telephone: 800-438-4380


NIH SeniorHealth

NIH SeniorHealth is a website developed by National Institute on Aging and the National Library of Medicine which are both part of the National Institutes of Health, providing information on Alzheimer's disease.


The Association for Frontotemporal Dementias (AFTD)

AFTD is a new nationwide non-profit organization whose mission is to promote and fund research into finding the cause and cure for the frontotemporal dementias; to provide information, education, and support to persons diagnosed with FTD and their families and caregivers; and to educate physicians and allied health professionals about FTD.


For information, including a brochure and newsletter, click above or write:

AFTD
Radnor Station Building #2, Suite 200
290 King of Prussia Road
Radnor, PA 19087

By Phone:

267-514-7221

866-507-7222 (toll free AFTD’s HelpLine)


Area Agencies on Aging

Every county has an "area agency on aging" which offers information and referral to hospice and support groups, mental health care, community-based long term care, home delivered meals, caregiver support programs and other services.


RESEARCH


Alzheimer's Disease Center: University of Pennsylvania

The Penn Alzheimeris Disease Center (ADC) is one of the 29 National Institute on Aging funded programs dedicated to unraveling the causes, treatment and cure of Alzheimeris Disease and other dementias.


Farber Institute for Neurosciences: Thomas Jefferson University

The Farber Institute is a multidisciplinary center initially focusing its efforts on basic and clinical research in Alzheimer's disease, Parkinson's disease, amyotrophic lateral sclerosis (ALS) and other neurodegenerative disorders.


Project ACT: Community and Homecare Research Division of Thomas Jefferson University

Project ACT (Advancing Caregiving Techniques) is a study designed to help caregivers learn new ways to manage challenging behaviors common in persons with Alzheimer's disease or related memory disorders.


Participants receive information and training on 1) caregiving and memory loss; 2) ways to manage behavior problems of dementia; and 3) coping strategies and ways to handle stress.


All participants receive payment for interviews conducted in their home. There is no cost for any part of the program. Participation does not affect services received through other agencies. Call 215-503-2897 for additional information.


Project ACT is conducted by the Community and Homecare Research Division (CHORD) at Thomas Jefferson University and is funded by the National Institutes on Health.