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Hyperbaric Oxygen Treatment for Autism?

Wednesday, September 22nd, 2010



The diagnosis of Autism has been rising at a rapid pace over the past decade. The process of finding answers and treatments has moved much more slowly. Families affected by autism often turn to unproven, alternative treatments that offer hope. Maiken Scott reports on one increasingly popular option – hyperbaric oxygen treatment.

(Photo: Joanne Rufo and son Daniel, age 6, during a hyperbaric oxygen treatment.)

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Dr. Patrick Elliott exudes a can-do attitude. The medical director of Hyperbaric Therapy USA in Newtown Square is jovial, energetic, tanned, and he enjoys chatting with his patients in the waiting room. During hyperbaric treatment, patients breathe in 100 percent oxygen in a pressurized chamber. This can reduce inflammation, and was first used for divers suffering from decompression sickness. Elliott treats patients with various ailments – including burns and Lyme Disease – but kids with autism make up the largest portion of his clientele.

Dr. Pat Elliott in front of a hyperbaric chamber

Dr. Pat Elliott in front of a hyperbaric chamber

Elliott: There’s a component to Autism spectrum disorders, in my opinion, that involves immunity gone wrong. That the immune system is reacting to various toxins or other conditions, causing inflammation. The oxygen itself helps decrease the inflammation, to improve immune function, and ultimately the decreased inflammation may improve blood flow to certain areas.

Elliott, a trained surgeon, was introduced to hyperbaric oxygen because of his sons. His twins were diagnosed with autism at age two and Elliott didn’t accept the limited treatment options on offer then. He was going to make his sons better – no matter what.

Elliott: I always say that that I got into alternative medicine with our children because there was no alternative.

Convinced that hyperbaric oxygen treatments, or H-BOT for short, helped his sons tremendously, Elliott decided to pursue this approach professionally. He says it is no replacement for behavioral therapies such as Applied Behavioral Analysis and speech therapy, but makes an effective addition.

Joanne Rufo has been coming here with her six-year old son Daniel for several weeks; they are in the home stretch of the 40 treatments Elliott recommends. Rufo climbs into the oxygen chamber with her son – it’s a comfy looking clear tube, and Daniel’s biggest concern is what movie to watch:

Daniel: I want to watch Nemo!!

Rufo says standard treatments, such as occupational and speech therapy, haven’t done much for her son.

Hyperbaric Chamber

Hyperbaric Chamber

Rufo: the only response I saw from any of the therapies was, he was able to calm down a lot after some occupational therapy with deep tissue massage, and then I also saw an increase in his speech from speech therapy , but it hasn’t been a night and day change for us.

Within two weeks of starting HBOT, she started seeing results she liked:

Rufo: his eye contact was better, and he was communicating better – normally, he wouldn’t ask a lot of questions. For example when I was on the phone, he would say – who are you talking to that was something new for him to do.

Dr. David Mandell of the Center for Autism Research at the Children’s Hospital of Philadelphia doesn’t quite buy the hype surrounding hyperbaric oxygen:

Mandell: Part of my training is to be a skeptic, and I am certainly skeptical of treatments until I see the evidence of their effectiveness, and that’s what makes me a believer.

He says what little research there is on this approach does not suggest that HBOT works in the treatment of autism. So far, there have been two randomized controlled trials of HBOT and autism that have shown little or no effect.

But Mandell says since parents are utilizing these methods anyway, more studies are needed so that research will catch up with practice:

Mandell:
families hear theories about what treatments work, and are really desperate for a change in their children, very understandably so, and are often are willing to try anything

Dr. Dan Coury of the Autism Speaks advocacy organization says research might not have much impact on parents who believe in hyperbaric therapy.

Joanne Rufo and son Daniel, age 6.

Joanne Rufo and son Daniel, age 6.

Coury: When studies come out showing that an alternative treatment is not effective, some families immediately assume that the establishment of medicine is trying to crowd out this effective treatment and that they can’t be trusted.

Proof or no proof, Joanne Rufo says she will try whatever might make a difference in Daniel’s life. She has another son, and works full-time, and says paying for Daniel’s HBOT treatments at $140 a shot has been tough:

Rufo: You just don’t take vacations, you don’t drive an expensive car, you just sacrifice, you don’t go out to dinner, but when you see the changes in him, it’s worth it.

Dr. Patrick Elliott says 60 percent of his patients with autism show improvements:

Elliott: We’re looking for good stuff, we’re not looking for subtleties. If you are going to go into this chamber for 40 hours, for eight weeks, spend the money, like with my kids, I want to see something good. And with most kids, we really do.

He says today’s alternative treatment could well become tomorrow’s mainstream approach.

And David Mandell admits – right now, the mainstream scientific community doesn’t have much to offer for parents:

Mandell: We focus tremendously on what the causes of autism are, and why the prevalence is increasing, and we don’t focus enough on what we need to do to help these children integrate into their communities, and to optimize their quality of life, and their families’ quality of life.

Joanne Rufo says she constantly hears about new therapies from other parents:

Rufo: There’s anything from oxygen chamber to swimming with dolphins to riding horses that people swear by, you don’t just stop looking for something that’s going to help him learn and be a part of life – it’s not going to end.


3 Comments

  • Won't stop till he is cured says:

    It is working already after only 5 dives!!! I am going for the whole 40 and not only do we see a difference as his parents, but family, friends and teachers are in shock!! People who are dead set against biomedical treatment are telling us to keep going..get that boy in the chamber it is working!!! Don’t let any skeptics stop you, they don’t have children with Autism, we do!

  • Sheri F says:

    I would like to respond to the above comment…My son Ben is 4 yrs. old and completed HBOT, (40 dives), at Hyperbaric Therapy USA. My son was diagnosed with autism at approx. 20 months old, but we knew something wasn’t right at 16 months. I believe Ben was not born with autism…we have many videos of him responding to his name with good eye contact. He reached all of his developmental milestones on time and was constantly babbling and making new sounds. In fact, my daughter was being seen by a pediatric speech therapist, for a short length of time, and she commented that “he’ll definetely not need to see me”. At 15mos and then at 18 months Ben showed an overall decline in function. Approx. 14 hrs. after his 18 mos. shots, at around 6am, Ben woke up squealing, vomiting with a high fever (105 degrees). His eyes were rolling back in his head and when we were finally able to calm him down, he started with head jerking to one side. We rushed him to the pediatrician (big mistake) who denied that any of these symptoms were related to the shots and that it was just a “coincidence” that something else was evolving at the same time and it appeared to be autism. The head jerking lasted for about 4 to 5 days. My son went from responding to his name to acting “deaf”, sucking his thumb and staring a lights and ceiling fans. When I asked my pediatrician about an “autism” diagnosis and if there was hope, he put his arm around me and said “there’s hope for Emma (my typical 4 year old)…..needless to say we were devastated and never returned to that pediatric practice. We took him to a newrologist who dx. him with autism and recommeded intense therapies. My husband and I have done alot of research since then and Ben has been receiving biomedical therapies from a DAN practioner since 21 months old. He has made significant progress with the Gluten / Casein Free Diet as weill as B-12 shots, digestive enzymes and probiotics…all safe. He also made significant progress with HBOT….his eye contact and auditory comprehension improved and he began saying words after his 24th dive. With all the speech therapy he received prior to this ,(for 2 years), he never said a word. He is now in preschool and receiving private therapy in addition to biomedical tx. We are going to complete 20 additional dives beginning in October. To all the pediatricians who do not believe in biomedical treatment….thousands of parents can’t be wrong. What is the point of coming to see you, only to hear your child has autism and “have a nice life. Alot more research needs to be done as far as vaccines being a potential “trigger” of autism or autism symptoms. I have spoken to hundreds of parents who report a significant decline in development or complete halt in development after their childrens vaccines. It’s obvious that the government and pharmaceutical companies do not want research to be done because of the BILLIONS of dollars they are making from their vaccines (does anyone really believe that the swine flu was a “pandemeic”, please). My goal is to give Ben the happiest, most functional life he can have. I am not naive and realize that Ben may never be off the spectrum, but have high hopes for his future. The experts on autism are definetely the parents….from my experience, pediatricians and supposed “autism” experts do not have much to offer except a diagnosis.

  • Fraz Ismat says:

    This is the worst example of “health reporting” that I have heard in quite a long time. The set-up of the “he-said/she-said” dynamic in which the quackery of HBOT in ASD is set up against the reasoned response from an experienced autism researcher gives the HBOT much more credence than it deserves. I thought that WHYY would know better than to fall into this trap.

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