Sending medical test results directly to patients
Friday, August 28th, 2009
Bucks County lawmaker Marguerite Quinn says patients should get some of their test results directly from the lab. She has proposed a bill that would require testing facilities to send a summary report of imaging tests, such as MRIs and EKGs. (Photo: Wikicommons/Daniel Schwen)
Quinn says she's responding to reports from constituents who say critical test results never reached them. This week members of the state House health committee applauded the bill's intent, but many had questions about protecting patient privacy.
Lancaster County Representative Brian Cutler was an X-ray technologist before becoming a legislator.
“Not obtaining results in a timely manner is very unfortunate, but we as patients are already entitled to our results, so I'm not sure that imposing another mandate is necessarily going to fix the problem,” Cutler said.
Despite many reservations, the health committee unanimously agreed to forward the bill to the full House for debate.
“They agree that there's a problem out there, and there have been deaths that have been a direct result of the failure to communicate medical records,” Rep. Quinn said.
The representative says the test results would be sent to patients — by post, email or fax — 10 days after doctors are notified.
“This whole thing is just a safety net, the goal is still that the physician goes through and delivers the test results to the patient,” Quinn said.
The Pennsylvania Medical Society and the Hospital and Health System Association of Pennsylvania oppose the bill in its current form. In an email, an association spokeswoman said sending test results directly to patients – without the benefit of a doctor's explanation, could lead to misinterpretation “because of false positives, secondary diagnoses, or expected variations.” She says the association does support changes that would alert patients that their test results are available through their physician.
There is some precedent for Quinn's proposal. The U.S. Food and Drug Administration requires labs to send a plain-language summary of mammography results directly to patients.


At first glance, it sounds like a great idea for consumers. However,
1) This would be a great increase in employee and postage costs for hospitals.
2) It would create the need for a process to delay sending test results to patients for 10 days. We would also need to send a cover letter to explain to patients why we are sending the results (and to please call the ordering physician for any questions or concerns)
3) There will be concerns related to patient privacy and maybe the requirement of asking the patients at registration whether they want copies sent to their home or another location (especially for patients who do not wish for others in their home to know they had testing done).
4) Until all hospitals have patient portals, this would be very resource-intensive.